Experience with the healthcare system for caregivers of dementia patients
Introduction
More than 16 million Americans provide daily help to people with
dementia (PWD). Caring for people with disabilities differs from being a family
caregiver for several reasons. First, as their physical, cognitive, and
emotional abilities deteriorate, PWD requires more caregiver monitoring, dementia support with
instrumental activities such as money management or driving, and self-care
duties like washing and clothing. Second, PWD behavioural changes and
communication challenges may increase caregiving demands and caregiver stress
in later phases, leading to losses in caregivers’ mental and physical health.
PWD frequently deal with various chronic diseases
and age-related changes, such as diminishing vision and hearing, because age is
a critical risk factor for dementia
patients. Therefore, a multidisciplinary team must
provide continuous, comprehensive, and coordinated treatment for this complex
network of functional impairments. Given PWDs’ increasing difficulties with
memory and understanding, carers are critical advocates for PWD healthcare to help people with dementia inside and outside clinic visits.
Preparing for visit
The process of mentally and emotionally preparing PWD for a
medical appointment is referred to as “preparing for the visit.” The restrictions
reported in this group’s caregiver responses were classified as PWD cognitive
and behavioural impairments. There was no recognized sub-category for
facilitators. The caregivers’ explanations of perceived difficulties are
included below, along with, when applicable, facilitation techniques for
removing obstacles and caring for people with dementia.
PWD cognitive and behavioural
limitations
Physically getting PWD ready (such as bathing and clothing) was
often difficult, according to caregivers. The procedure was described as “a
tremendous production” and “a lot.” The approach was complicated by PWD’s old
age and comorbidities, necessitating alterations to the morning schedule on the
day of the visit.
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